I have no doubt that the Care Pathways have the best of intentions to make an inevitable death as painless and comfortable as possible. But at best this is euthanasia and at worst it is something else. The latest article in the Daily Mail’s “campaign” is more than a little disturbing. If a Care Pathway – by definition – is intended to lead to a dignified and pain-free death then causing additional suffering by being put on the Pathway cannot be right. I am not sure where the ethical line goes but I cannot help feeling that a final painless lethal injection may be preferable to 10 days of starvation and thirst and suffering as feeding and fluids are denied and a baby shrinks to death.
Sick children are being discharged from NHS hospitals to die at home or in hospices on controversial ‘death pathways’.
Until now, end of life regime the Liverpool Care Pathway was thought to have involved only elderly and terminally-ill adults. But the Mail can reveal the practice of withdrawing food and fluid by tube is being used on young patients as well as severely disabled newborn babies.
… One doctor has admitted starving and dehydrating ten babies to death in the neonatal unit of one hospital alone. Writing in a leading medical journal, the physician revealed the process can take an average of ten days during which a baby becomes ‘smaller and shrunken’.
The use of end of life care methods on disabled newborn babies was revealed in the doctors’ bible, the British Medical Journal. Earlier this month, an un-named doctor wrote of the agony of watching the protracted deaths of babies. The doctor described one case of a baby born with ‘a lengthy list of unexpected congenital anomalies’, whose parents agreed to put it on the pathway.
The doctor wrote: “They wish for their child to die quickly once the feeding and fluids are stopped. They wish for pneumonia. They wish for no suffering. They wish for no visible changes to their precious baby. Their wishes, however, are not consistent with my experience. Survival is often much longer than most physicians think; reflecting on my previous patients, the median time from withdrawal of hydration to death was ten days”. Parents and care teams are unprepared for the sometimes severe changes that they will witness in the child’s physical appearance as severe dehydration ensues. “I know, as they cannot, the unique horror of witnessing a child become smaller and shrunken, as the only route out of a life that has become excruciating to the patient or to the parents who love their baby”.
Bernadette Lloyd, a hospice paediatric nurse, has written to the Cabinet Office and the Department of Health to criticise the use of death pathways for children. She said: ‘The parents feel coerced, at a very traumatic time, into agreeing that this is correct for their child whom they are told by doctors has only has a few days to live. It is very difficult to predict death. I have seen a “reasonable” number of children recover after being taken off the pathway. I have also seen children die in terrible thirst because fluids are withdrawn from them until they die. I witnessed a 14 year-old boy with cancer die with his tongue stuck to the roof of his mouth when doctors refused to give him liquids by tube. His death was agonising for him, and for us nurses to watch. This is euthanasia by the backdoor.’ …..
Read more: http://www.dailymail.co.uk/news/article-2240075/Now-sick-babies-death-pathway-Doctors-haunting-testimony-reveals-children-end-life-plan.html?ito=feeds-newsxml
Tags: BMJ, Daily Mail, End-of-life care, LCP, Liverpool Care Pathway
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